The Ministry of Health clarified that the 2020 budget for rare diseases had actually increased by RM500K to RM16.5 mio.
The total budget includes a budget allocation of RM10 mio for 2020, as well as a current provision under Radiotherapy and Oncology activities of RM6.5 mio.
The government has also developed a National Framework for Rare Disease.
To this end, the Ministry of Health had developed the National Framework for Rare Disease to establish a governance committee to integrate the management of rare disease patients in Malaysia, in a comprehensive and holistic manner that includes advocacy for public health education, screening and patient diagnosis as well as strengthening prenatal diagnosis and newborn screening, clinical management, referral systems, data collection and rare disease-related research.
/CodeBlue 06-12-2019
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